Incredible.
| Pretty sure she's not asking Santa for a helicopter sleigh ride |
Charlotte started fighting a cough about two weeks ago. It had her up and down....we were watching it...listening...medicating.
The day before Christmas Eve she woke up with a terrible cough - a constant, hacky, non-productive cough. I let the doc know we were coming in and opted not to give her a breathing treatment. Worried the whole way to the office because she couldn't stop coughing and she looked miserable.
Pediatrician examined her. Double ear infection, decreased breath sounds in right lung and she was wheezing. Gave her an in-office breathing treatment. Prescribed antibiotic (for ears/chest), steroid (to open up airways), albuterol (inhalant to open airways/decrease wheeze) via nebulizer (vs chamber for the "soothing" saline) every 3 hours and a strong cough suppressant with codeine to try and give her some relief and some rest.
Let me just interject here that albuterol? Allbuterol around the clock? Turns a normal child into a child with ADHD on speed...
Around dinner time we started to worry. The albuterol wasn't working, she couldn't sit still, cough medicine wasn't working. She couldn't stop coughing....I mean COULD NOT STOP COUGHING. Called after-hours. The doctor that was on-call was the pediatrician that treated her earlier int he day (blessings). She tells me to pack her a bag.
(I will insert here - the only "good" thing about an asthma diagnosis: when you go to an after-hours clinic if your kid has an asthma diagnosis they have to take you straight back (blessings). Which was really great that night because the clinic was so full they had to close the doors an hour early.)
Doc listens. Decides to admit her. Just then a friend of mine texts me. Oh, it's Stephanie! Thank GOD because I've been wracking my brain trying to think of who I have nerve enough to call the night before Christmas Eve at 9:00pm to come over to the house and sit with Ruby so I can go with Charlotte & Adam to get her set up in the hospital. And of course I don't even think I have to ask her (blessings) - she just volunteers.
The next 8 hours are pretty rough. A trip to the hospital is a big deal and Charlotte wanted nothing to do with it. The IV took 1:15. She was so good and so ready and if the nurses had been competent it would have been fine. She walked willingly into the exam room, looked at all of the terrifying medical things, climbed up onto the table, saw the needles, and let them wrap her up in a sheet like a burrito. Fine. It was when they blew her vein and blood went everywhere that things got a little ugly. It was a ridiculous. The nurses did not handle it well. I did not handle it well. Especially after 20 minutes and still no IV; they let her up because (1) they'd blown the vein; (2) she had to potty; (3) they have to re-wrap her to switch arms anyway. I let the nurses have it. What the hell is this? Get somebody in here that's competent! This is insane! ARE YOU KIDDING ME? And Charlotte immediately starts calling them stupid...
...but hey, it made me feel better to attack them so maybe she's feeling a bit more empowered too...
But you know, over Christmas my Brother-In-Law said something that got me thinking. He said to remember that your children look to you, their parents, to learn how to respond, how to react in emotionally charged situations. Like a trip to the hospital. Do you stay calm? Do you freak out? Do you break down? Remember Ang. They're looking to you & Adam (blessings). And then he commented on Ruby's classic beauty, her timeless "Mona Lisa" eyes...(blessings)
He's right of course.
As he's telling me this the first thing that comes to my mind is the aforementioned episode...but then I thought...I want a kid that stands up for herself, I don't want to raise a meek kid...then again, I don't want her verbally abusing nurses...dilemma.
Adam went back in with her. I sat outside of the room (rule is only 1 parent in despite the fact I pointed out to them that they obviously need all the help they can get). Blew another vein. But finally got her IV started. I made it home about 1:00am to my friend and my sleeping baby. Then I cleaned the house, top to bottom, like a mad woman. It was hard for me to not be there, with Charlotte, I needed to do something...
Meanwhile Adam & Charlotte had the night from hell. Charlotte's coughing got worse and worse. Albuterol treatments every 2 hours which didn't seem to help the coughing. She was shaky and scared and coughing coughing coughing. Adam insisted the nurses step up and pay attention. There were no peds doctors at the hospital, he forced the nurses to call her at home. It would end up waiting until morning.
The doctor talked to me the next morning to ask about the coughing. I could hear her in the background. She sounded scary-awful. Charlotte had the doctor baffled. Doctor was afraid something was blocking her upper airway, that something was lodged in there...
Ruby & I made it to the hospital about an hour later. Charlotte was bouncing around on her IV tether and coughing constantly. Santa Claus came and delivered a bag full of toys, including high heels (brilliant) which she hobbled around on while...you guessed it! Tethered.
I was shocked at her condition. SHOCKED. The coughing never stopped, and it shook her whole body and she looked terrible. So then Adam & I start bickering, he's exhausted and worried but has been dealing with it all night and all morning and I'm worried and frantic. I want to see a doctor immediately. So, then it starts. Again, there are no doctors on the floor. PICU is closed. And then the nurse has the audacity to say to me, 'we hear this with respiratory cases all the time', but then she can't tell me Charlotte's treatment plan because she has 4 other kids in the wing all with respiratory issues.
We insist on seeing the doctor but I don't think they take us seriously until afternoon respiratory (therapist) shows up. Charlotte hacks all through the breathing treatment and it doesn't help. The therapist is afraid to leave the room. Thirty minutes later, Charlotte's pediatrician shows up. She listens to her. She listens to me describe the morning & afternoon. She wants to airlift her to Egleston Children's Hospital in Atlanta where they have an ENT Pediatric Specialist, she's concerned that (1) there is a good likelihood by the sound of her cough something is lodged in her upper airway; (2) if the coughing continues she will puncture a lung; (3) Columbus Regional is not equipped to handle a true respiratory emergency and Charlotte cannot have another night like the one she suffered through the night prior.
Then she removes all food and water from the room and tells me to prepare myself for exploratory surgery when we arrive.
This just got real, real fast.
Make the necessary phone calls (because at this point Adam is at home with Ruby).
I think within 30 minutes we had about 100 people praying for us (blessings). I was pulling Charlotte and her IV around the peds corridor in the wagon and I felt it, I did.
We waited for Adam and the chopper.
Find out no choppers are running on Christmas Eve. Bummer. Would have been some kind of sleigh ride...but the coughing has subsided so I'm not quite as worried...not quite as emergent a situation as it seemed like it could have been...Adam rides with her in the ambulance
She coughs 5 times in the ambulance. When they arrive at Egleston she's doing much better. The "coughing episodes" are gone (blessings).
Christmas miracle? Maybe...
Egleston Children's Hospital? Blessing.
Charlotte is tired and hungry. When I arrive with my dad she starts begging us for food and asking us to take her home. She really wants a cheese pizza. Doctors examine her, listen to us describe the cough, she sees respiratory and they arrange for an x-ray. We have to have an INHALE - EXHALE x-ray...some kind of tricky but Egleston make it happen. Charlotte's blood sugar is low, she's exhausted and she's scared but we get the x-rays.
They're starting to think it was an asthma flare-up...possible she caught the croup virus and that's what started this.
X-ray is clean. No lodge. No pneumonia. No puncture. She can have some cheese pizza. Charlotte has breathing treatments throughout the evening and night, and has a good night. Devours the pizza (yes, Adam found her cheese pizza on Christmas Eve) (blessings). She has her own, highly skilled/qualified nurse and doctors specializing in respiratory there all night (blessings).
The next morning Santa Claus (in a germ mask) wakes her up with a big red bag full of toys. Some friends of ours come to visit. I arrive, anxious to talk to the doctor because I'm completely confused by this sudden croup diagnosis. As common as croup is, surely our doctor could have diagnosed it...instead of sending us to Egleston. When I arrive I tell the nurse I want to see a doctor. Five minutes later three specialists walk in the room and have me go through the culmination of Charlotte's past week. I'm not one to leave out details. I include the bag of whoppers she munched at Fantasy in Lights. It takes a while...
Whatever it was, it culminated in an asthmatic flare-up.
We were able to go home on Christmas day (blessing) with a full-scale "Asthma Attack Plan".
And through it all, we had our friends and our family (BLESSINGS), it felt like we had your support every step of the way.
So, to Noni & Popi's house we went. Charlotte was high on albuterol, which made for some entertaining present-unwrapping. The cough that had disappeared while at Egleston was back but not near as bad as it had been (blessings).
Then we looked outside and, low and behold, we had a white Christmas on our hands. We bundled up in mother's winter clothes and headed outside...in the front yard. (The trampoline Noni & Popi got for the girls was in the backyard but we were still keeping it secret due to the no-cold-weather-no-exercising asthma rule
| Charlotte & Popi in the snow |
| Noni, Charlotte, Ang (Adam, Roo, Keeper in the background) |
| Ang, Ruby, Adam (Keeper in the background) |
Ruby's asthma started flaring up that night. We headed to the doctor on Tuesday for a follow-up and she listened to Ruby, congested cough, wheezy lungs - both girls sounded exactly the same. Ruby has been having some rough nights, so Charlotte's treatments have backed off but Ruby's have picked up. But we'll get through this. With our friends and family and faith and courage we can get through anything.
Happy New Year.





